Yesterday I signed on as a dear friend’s next-of-kin, through the NSW police program. My friend lives alone and registering her form with her local police station means if she’s involved in an accident or major incident, I’ll be informed, so will be able to support her. I’ll let her … Read more
Today, a story of successful support from Dorothy Kamaker and her team for Sandra. Dorothy is one of those advocates we need more of: she helps people navigate our confusing modern health care system to get the style of care they want – whether minimal or all out, usually … Read more
Noelene graduates today at the Liverpool Hospital Palliative Care Volunteer training program. It’s a great program run by great people. She receives her certificate from Janeane Harlum, the area Palliative Care Manager and Alex Huntir, of Palliative Care NSW. https://www.swslhd.health.nsw.gov.au/cancer/pallcareVolunteer.html
“With impending death, the circulation slows, the heartbeat weakens, and the breathing gets slower or more irregular, but just as the heart beat and breathing case, the brain seems to have a burst of activity.” – So says Dr Michael Barbato in a recent interview. The interview can be found … Read more
I spoke to Suzan last week. Hers is a disturbing but common story. I’m going to talk to palliative carers about what went wrong and report back on how to avoid this happening to you. When Suzan’s brother Frank was dying of a rare brain disease he was in an … Read more
(This was first posted on June 12 at 8.33pm.) Fantastic news – NSW is increasing funding for palliative care by $100 million. “An extra $100 million will be pumped into palliative care over four years, including funding to employ new specialists and train 300 nurses and allied health staff.” That’s … Read more
Palliative care: Provides relief from pain and other distressing symptoms Affirms life and regards dying as a normal process Intends to neither hasten nor postpone death Integrates the psychological and spiritual aspects of patient care Offers a support system to help patients live as actively as possible until death. I … Read more
Patient advocate Dorothy Kamaker reports this note from the coalface in her advocacy work. “Deirdre wanted her 93-year-old mother Helen to be allowed to die. Helen had been three weeks in hospital with a terminal illness and was being “tortured” by futile treatments with no hope of recovery. For Deirdre, … Read more
What a wonderful idea! The Reflected Legacy project with artist Flutter Lyon has been started to bring comfort, support and creativity to the Palliative Care Ward at Liverpool Hospital,Sydney. The goal is to transform a grey hospital ward with colour and conversation, and capture the life stories of people who … Read more
“Oh dear!” Linda Hansen groaned as she looked at yesterday’s goodgrief60.wordpress.com posting. Linda is the Executive Officer of Palliative Care NSW and every time a story comes out, like the one I posted yesterday, she frets that the good people working in palliative care will feel undervalued. That posting picked … Read more
Palliative care in regional NSW at 1960s standards, expert tells ABC News By Liz Farquhar ABC News One of Australia’s first specialist palliative care doctors has accused New South Wales health authorities of dropping the ball when it comes to end of life care. Yvonne McMaster said regional areas … Read more
The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care. Statistics show that everything Ellen Goodman says about the American experience is the same in Australia. That is, we have the same gap between the death people say they want and the death they have. … Read more
Heather Wiseman interviews Jeanette Lacey for Palliative Care Australia. “In my experience, about 85 per cent of Intensive Care Unit patients who had chronic and complex health conditions had never considered that they might be terminal in nature. Often it was only when they came to intensive care with an … Read more
Journeys of the Heart by Jodi Rose. Arbon Publishing. After losing her husband, the famous Australian swimmer Murray Rose, Jodi searched out the stories of other carers who were there for those they loved, supporting them until they died. Those interviews turned into this collection of stories. The subtitle of … Read more
When does grief become abnormal? And if we don’t see it in medical terms soon enough, do we lose chances to help?