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Why did this happen?

I spoke to Suzan last week. Hers is a disturbing but common story. I’m going to talk to palliative carers about what went wrong and report back on how to avoid this happening to you. When Suzan’s brother Frank was dying of a rare brain disease he was in an … Read more

$100m boost to palliative care in NSW

(This was first posted on June 12 at 8.33pm.) Fantastic news – NSW is increasing funding for palliative care by $100 million. “An extra $100 million will be pumped into palliative care over four years, including funding to employ new specialists and train 300 nurses and allied health staff.” That’s … Read more

A great description of palliative care

Palliative care: Provides relief from pain and other distressing symptoms Affirms life and regards dying as a normal process Intends to neither hasten nor postpone death Integrates the psychological and spiritual aspects of patient care Offers a support system to help patients live as actively as possible until death. I … Read more

Remembering mothers today

A photo of my mother just with me – something very rare. It’s Mother’s Day in Australia – a chance to reflect on all the lovely mothers who have gone before us. I’m loving seeing my friends tributes splashed across social media. I love especially the photos of women taken … Read more

Helen and Deirdre

Patient advocate Dorothy Kamaker reports this note from the coalface in her advocacy work. “Deirdre wanted her 93-year-old mother Helen to be allowed to die. Helen had been three weeks in hospital with a terminal illness and was being “tortured” by futile treatments with no hope of recovery. For Deirdre, … Read more

At her window

It’s easy to miss the practical companioning aspect to the care of the dying in our modern, acute-care oriented health system.  Creativity and Life coach Helen Carmichael lives in a Bondi flat with a view over that iconic Sydney beach and she watched from her window as an elderly neighbour lay … Read more

DIY probate

When Mel’s mother Dorothy Richard died, Mel and her husband Gav decided to handle the probate themselves, without getting a solicitor involved. So what is probate? The West Australian public trustee has a good definition: “Probate is the process of proving and registering in the Supreme Court the last Will … Read more

New life

“Grief is in two parts. The first is loss. The second is the remaking of life.” – Anne Roiphe Thankfully, with the birth of a new grandchild, I can take this wise comment literally. Although it is hard, after grief it is important to remember to seek out moments of … Read more

Graham’s story

It is fascinating but not surprising how experiences of grief can be quite different. “My mother died in a car crash. She drove into the path of an oncoming vehicle about 15 years ago – fully her fault,” Graham said. “We felt no anger at either her or the other … Read more

Talking about the ‘D’ word.

Just the sort of conversation we need: thought provoking discussion over a cup of tea. The program looks great and the speakers inspiring. North Sydney Council continues to provide community events (in Covid-19 safe times).  In Conversations – Death and Dying  The North Sydney Community Centre also hosted these great … Read more

Farewelling Dot with music

Gavin worked in the music industry for a long time – so music has a special significance to him – and he knew it did for his mother-in-law Dorothy, who as a young woman had strong connections with the theatre. But unfortunately, the family didn’t get the chance to talk … Read more

My friend Margie says goodbye to her brother Stephen

“I’d been asked by my brother Stephen’s children to say the eulogy at his funeral,” said my friend, another Margie. “At first I wondered how I could possibly do it, whether I would have the strength. As I thought about who Stephen was, I realised he was such an engaging … Read more

Reflected legacy

What a wonderful idea! The Reflected Legacy project with artist Flutter Lyon has been started to bring comfort, support and creativity to the Palliative Care Ward at Liverpool Hospital,Sydney. The goal is to transform a grey hospital ward with colour and conversation, and capture the life stories of people who … Read more

It’s not as simple as numbers, says Linda

“Oh dear!”  Linda Hansen groaned as she looked at yesterday’s goodgrief60.wordpress.com posting. Linda is the Executive Officer of Palliative Care NSW and every time a story comes out, like the one I posted yesterday, she frets that the good people working in palliative care will feel undervalued. That posting picked … Read more