Planning

What is a next-of-kin?

Yesterday I signed on as a dear friend’s next-of-kin, through the NSW police program. My friend lives alone and registering her form with her local police station means if she’s involved in an accident or major incident, I’ll be informed, so will be able to support her. I’ll let her … Read more

Facebook etiquette when someone dies

by Rachel Thompson, Mashable. When someone you love passes away, turning to Facebook can be a profoundly helpful way of processing that loss and expressing your grief. But, for the deceased’s nearest and dearest, social media can be deeply overwhelming and upsetting in the immediate aftermath and even the long … Read more

Letting go – there’s no end to it.

by Tony Doherty   http://us9.campaign-archive2.com/?e=3f5f599bc5&u=d271338e1956a8bd6631e2743&id=5e6a3f9721  We are never more human than when we are grieving. A strange claim? Perhaps that statement even sounds a little harsh, unfeeling. Grief can be excruciating. It is almost always accompanied by pain. We try to avoid it – even avoid thinking about it. But stop and consider … Read more

Making a difference

When Elaine Searle was a young woman her beloved uncle was buried and she was shocked by how bad the funeral was. “His coffin just slid out of sight, after a few platitudes were said. There was nothing personal.” “Even though I was only in my early 20s I thought … Read more

Congratulations Noelene!

  Noelene graduates today at the Liverpool Hospital Palliative Care Volunteer training program. It’s a great program run by great people. She receives her certificate from Janeane Harlum, the area Palliative Care Manager and Alex Huntir, of Palliative Care NSW. https://www.swslhd.health.nsw.gov.au/cancer/pallcareVolunteer.html

The deathbed vision

“With impending death, the circulation slows, the heartbeat weakens, and the breathing gets slower or more irregular, but just as the heart beat and breathing case, the brain seems to have a burst of activity.” – So says Dr Michael Barbato in a recent interview. The interview can be found … Read more

Why did this happen?

I spoke to Suzan last week. Hers is a disturbing but common story. I’m going to talk to palliative carers about what went wrong and report back on how to avoid this happening to you. When Suzan’s brother Frank was dying of a rare brain disease he was in an … Read more

$100m boost to palliative care in NSW

(This was first posted on June 12 at 8.33pm.) Fantastic news – NSW is increasing funding for palliative care by $100 million. “An extra $100 million will be pumped into palliative care over four years, including funding to employ new specialists and train 300 nurses and allied health staff.” That’s … Read more

A great description of palliative care

Palliative care: Provides relief from pain and other distressing symptoms Affirms life and regards dying as a normal process Intends to neither hasten nor postpone death Integrates the psychological and spiritual aspects of patient care Offers a support system to help patients live as actively as possible until death. I … Read more

Helen and Deirdre

Patient advocate Dorothy Kamaker reports this note from the coalface in her advocacy work. “Deirdre wanted her 93-year-old mother Helen to be allowed to die. Helen had been three weeks in hospital with a terminal illness and was being “tortured” by futile treatments with no hope of recovery. For Deirdre, … Read more

DIY probate

When Mel’s mother Dorothy Richard died, Mel and her husband Gav decided to handle the probate themselves, without getting a solicitor involved. So what is probate? The West Australian public trustee has a good definition: “Probate is the process of proving and registering in the Supreme Court the last Will … Read more

Talking about the ‘D’ word.

Just the sort of conversation we need: thought provoking discussion over a cup of tea. The program looks great and the speakers inspiring. North Sydney Council continues to provide community events (in Covid-19 safe times).  In Conversations – Death and Dying  The North Sydney Community Centre also hosted these great … Read more

Farewelling Dot with music

Gavin worked in the music industry for a long time – so music has a special significance to him – and he knew it did for his mother-in-law Dorothy, who as a young woman had strong connections with the theatre. But unfortunately, the family didn’t get the chance to talk … Read more

Reflected legacy

What a wonderful idea! The Reflected Legacy project with artist Flutter Lyon has been started to bring comfort, support and creativity to the Palliative Care Ward at Liverpool Hospital,Sydney. The goal is to transform a grey hospital ward with colour and conversation, and capture the life stories of people who … Read more

It’s not as simple as numbers, says Linda

“Oh dear!”  Linda Hansen groaned as she looked at yesterday’s goodgrief60.wordpress.com posting. Linda is the Executive Officer of Palliative Care NSW and every time a story comes out, like the one I posted yesterday, she frets that the good people working in palliative care will feel undervalued. That posting picked … Read more