Palliative Care

There is now a new definition of palliative care

Redefining Palliative Care—A New Consensus-Based Definition

There is now a new definition of palliative care – thanks Caroline Litster for pointing this one out. (Caroline is a researcher at Flinders University and a palliative and supportive services provider with ELDAC.) Caroline shared this item from The Journal of Pain and Symptom Management (JPSM), reported in its … Read more

Professor Joe and ‘the inappropriate question’.

Prof Joe deals with the inappropriate question.

We love this one. Prof Joe is so clear and gentle…and he knows how to tell a good story. https://www.youtube.com/watch?v=30eXWq80E00&feature=youtu.be For more from Prof Joe, including a range of brilliant resources, go to: https://www.profjoe.com.au/ For more good communication on advance planning, go to:

More palliative care at home and in aged care? Yes please!

Investing to save

A new report is calling for the appointment of a Palliative Care Commissioner and $240 million a year to support home based palliative care, reports Judy Skatssoon of Community Care Review. “The report  says palliative care is treated like an “optional extra” but should be a core health service in the aged … Read more

Still thinking about nursing homes and Covid-19.

Photo by Vlad Sargu

Covid-19 has exposed the confusion in our culture between being old and fit – with many more years left in you and being elderly and frail and near death. Before Covid-19, the ordinary flu would wipe out a surprisingly large number of elderly people each winter. No-one thought about it … Read more

Jenny’s Facebook group Covid Safe Elders Australia.

Jenny McFadden has started a Facebook group, Covid Safe Elders Australia.

Jenny McFadden has started a Facebook group, Covid Safe Elders Australia. People can get in touch with the group and share their concerns about the way the elderly are being managed during Covid-19. “We’re interested in people who have experiences and stories about aged care. These experiences can help us … Read more

To live or not to live – Covid-19 and the elderly

As Australia’s Prime Minister Scott Morrison announced an ‘early mark’ for Australians on social distancing restrictions from Saturday 2 May, 2020, because of our success in controlling Covid-19, the spotlight stays on the continuing sources of outbreaks – including aged care facilities. Scrutiny will ensure we don’t have a sudden … Read more

Compassion at the end of life in Covid-19 times.

Palliative care specialist MICHAEL BARBATO writes and teaches about how to bring love and kindness to the dying. Here are his thoughts on the challenges to this goal with Covid-19. He also has a terrific recommendation to read, Rachel Coghlan’s piece on “small but potent acts of compassion.” See the … Read more

Palliative care and Covid-19

Palliative care is adapting to meet the needs of those with Covid-19 – and people dying of other causes. Palliative Care Australia has formed the Australian COVID-19 Palliative Care Working Group (ACPCWG) in partnership with palliative care related specialist groups. These are the Australian and New Zealand Society of Palliative Medicine (ANZSPM), … Read more

Don’t feel hopeless – even if you are old.

A Gentleman in Moscow by Amor Towles can teach us things now.

Here’s some good news. Getting sick with COVID-19 isn’t necessarily a death sentence – even if you’re old.  Norman Swan in his coronavirus update on March 23 finished his report by saying that 85 per cent of old people who get COVID-19 will survive. That’s something for the elderly to … Read more

How do we ensure good palliative care in these strange times?

Palliative care in the age of Covid-19

I like strange as a word. It is non-judgmental, it says this is different, unfamiliar, something new to be navigated. However, we need to put a few things on the table: actively putting strategies in place to retain the rights and manage the needs of the dying, the suffering and … Read more

This is a cry from the heart.

Ken, aged 95, locked down

I was just about to walk out the door to have dinner with my sister and cousin. It’s that kind of moment isn’t it, a moment when social distancing and all it implies means that family are the best people to be with. They’ll forgive you if you suddenly sneeze … Read more

Is death painful or more like uncomfortable?

ELDAC is providing opportunities for aged care facilities to improve their palliative care - pic courtesy ELDAC

The subject of painful death came up during a recent discussion about the palliative care needs of the elderly. “It’s probably more accurate to describe the discomforts of death, rather than pain at death, since for most people it is uncomfortable rather than painful,” a palliative care nurse explained. That’s … Read more

Gather My Crew – can help you share the love and support

Gather My Crew can help you organise your support while caring for someone who is dying

“Hello, I’m just calling on behalf of an organisation called ‘Gather My Crew’,” Susan said when she rang in to Jon Faine’s ABC Melbourne Known Unknowns program to discuss ‘the good death’. We were taking calls from people about how we can help each other improve today’s experience of death. … Read more

There is no such thing as unconscious.

Margaret Rice interviews Michael Barbato, pic courtesy NSNC.

Dr Michael Barbato recently made a big claim: “There is no such thing as unconsciousness.” He said this when I interviewed him for North Sydney Community Centre’s Conversations about Death and Dying. “Can you share with us, what the latest wisdom is, about the experience of the unconscious when somebody … Read more

The ideal vs the real family

Norman’s children all believe they know what he would want when he is dying.

I picked up many, many gems of wisdom from North Sydney’s ‘Conversations about Death and Dying’ on Saturday, (May 25, 2019.) It never ceases to amaze me that no matter how much you think you know about a subject there is always so much more to learn.